We started the day out with the MRI. It was pushed back a few hours because they had an emergency patient. We were fine with that and just thankful that we were not that emergency. We were the emergency in July and remember how it felt to be those parents. After the MRI we went to see his oncologist. He checked Jake out and then told us he did not want us to be alarmed but they did see something on his scan. In November it had been a clean scan. He explained it as an area that shows up bright in the field where he had radiation. It does not show up as the same color his tumor was. Sometimes you can get something called radiation change. It is where matter in the brain was actually burned and dies off. This type of area can get larger or stay the same. He can not 100% promise us that it is not the tumor starting to grow back, but felt confident it could be the radiation. He said it is rare to see this kind of radiation change to show up bright so early, but it is also very rare to see a tumor grow back so fast with the type of aggressive treatment that Jake had. We have to watch it closely and will go back in 8 weeks for another MRI to check this area. If it is a tumor recurring they would get him right back into brain surgery for his best chance of longer survival. That is honestly a road we are not even looking down yet. God has carried us through so many things and we have experienced so many miracles. It is a miracle Jake is walking and talking. After surgery we did not know if we would ever have our normal Jake back. We have also seen small things since brain surgery. He writes sentences and 90% of the time forgets to put capitals at the beginning. He has had to learn to type and really work on his writing. He also had to learn how to tie his shoes again. On the other hand ,his math scores have gone through the roof compared to where he was before surgery. So , after all of the news today, we are just trusting and praying that it is from radiation and going to enjoy every day of the next 8 weeks. Some days fear starts to creep in and I know that we cannot let circumstances steal our joy. Even when we get knocked down we have to get back up, put our focus on trusting in God and move forward. After all, we know who wins in the end. It is not Satan and it is not cancer!
He received a certificate and medal today for making it through cancer treatments. I looked at every kid in that clinic and they are the champions.
We have a friend who made a post the other day. Her son is also going through treatments. It said "Some people never meet their hero. I gave birth to mine." I THANK GOD for choosing me to be Jake's Mom. I have no idea how I was ever so blessed. I have spent many days wishing that I could take this all away from him. Then we have days like today when he spreads cheer everywhere he goes! He is a true testament to God and what it looks like to have joy in your life. He is our hero!!!!
So we still need the prayers to keep coming! God knows the outcome of all of our lives and we have to put our trust in him. We will not let fear win! Since many have asked, I will do a little update on myself. I am retaining fluid and need another heart cath on March 3rd. I may have to spend a couple of days in the hospital to get the fluid off and possibly be on a drip to get the right side of my heart pumping properly. All of this will get me better prepared for transplant. Some days I start to get discouraged that I am not on the list yet, and then I look back at the year we just had. God lined it all up perfectly! Even things that seemed to be the most horrible things ever, he has used his hand to make them for good and put it all in his timing. Amazing how he works that way. I had a friend tell me she knows it is hard some days because we would like to be able to see Gods GPS. I had to giggle. I not only want to see the GPS, I want to be the fun voice on it telling him what direction I think he needs to turn. :)
I will update this week on Jake's wish. Looking ahead we know this is going to be a year filled with miracles and blessings. When people say everyday is a gift they are not kidding! Thank you all for praying today and every day! We love each of you!
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